Hi Mel, whilst I applaud your attitude of staying positive I don't think there is any harm in calling the rheumy nurse - I really don't think you you have to accept feeling that rough. Good luck with everything - you have always been so honest on the forum about what you are going through and what you are facing and I sincerely hope it works out for you. Jo

Hi Mel

I am so sorry that your are feeling poorly. I agree I would have a chat with your rheumy nurse. You need some sort of proper management plan whilst you wait to try and conceive. Do not give up on your dreams of having a child. I am sure there are many people who have been in a similar situation and I am sure your just need lots of support both medically and emotionally over the next few months. You may just be having a flare that you would have had whether you had changed your medication or not.

Keep positive and make sure you get some support.

Thinking of you.

Jackie
xx

Thanks jackie
yes think so its seems calmed down quiote bit today,
off gp soon.
i will speak rheumy nurse,see what gp does or doesnt do firstly.
sepak soon
melly

Hi Melly


So sorry you're going through a nasty flare. The others have given you good advice, I hope you can take it.

Lyn

Thankyou all
amanda,barbs yep.
Beeb to see my own regular Gp today a very postive appointment gave me double slot of time.
left feeling very relieved and well cared for.

right

new meds
sun cream factor 50 for lupus trial run if no good change asap.
naproxen for inflammtion 500mg

got to call rheumy nurse for claification re 6 or 9 months before start ttc wants that confirmed from rheumy not some senior doctor.

also said folic acid im on is more than enough so thats no change.
the tooth infection she declares is deficntely making things flare up.

yes to rest,balacing things out.

see how i go on naproxen it helped before,use laptop not pc to lesson tennis elbow.

looked at my knees small amount fluid if naproxen doesnt lower that rheumy nruse must add low dose steriods tablets.
but not yet .

went onto to discuss whom i can see at surgey terms of lupus,turns out she herself is now head lady gp and had patient with sle same me whos had problem free pregancy so asked me what rheumy sais and explained hes actauuly giving me wrost scenrio noit to let them scare me and always tell eh whats een said.
wow i felt clamer after that.
it will be a wait and see if sle or ra or both are to be problem but to early say yet.

also need give planequil more time to work.

the plan is to do blood test in june at 3 months after no mtx to see how much inflammtion after couple months on nsaid,plus extra plaequil.


ive got to buy large wrap round sunglasses and big hat.
to protect me from sun.


keep using e45 on skin.

a very through deatiled appointment.

so been chemist got all medication and now home tired.

barbs sorry see you ahd no internet yesterday tis fine hun reply when can no rush.oh and if no appointment by tomorrow ring kings again re tooth treatment.

lovely doctor .

she was to say least cross other doc wouldnt give suncream,they will be dealt with asap.
and also not happy 9 months without very good reason.

thinks it may be due to lupus,ra not being under control enough but needs it clarified.


Melly

Joanna thank you youve really touched me alot such kindness
your s right i ahd to take big courage in making this choice,not knowing if lupus will become more proble is a risk as is what ra may do or not.
but gp encouraged me to see things in lighter way.
and was pleased i still belong to nras and that i joined lupus uk.

feeling such pain sweling sill abscess still waiting on hospiatl to get me in for treatment.
oh gp was dead pleased imdoing my maths,english courses.
said i can even drop note if things not good and she will send me out form for bloods earlier if needed.

so i shall be staing at same gp for now.

lot stiffness,pain,grr.

said she knew all along lupus aswell as ra but needed consultant to agree.

feeling rather teary tnogiht grr.

melly

Thankyou
amanda to soon for another depo only 4 weeks,and carnt hvae sulphazine its a no no for sle patients can cause lupus to flare,rheumy wants me on planequil,steriods.
got see hownaproxen goes and once anscess treated porb feel less pain,gp said infection of this sort will only make things flare.grr
so a restful day today.
dont feel sad anyone reading.
postive thoguhts good for us all.
just posting for support.

melly

Hi
Thanks Juile
yes,red boots be needed no appointment still re tooth,been so tired out today so rested alot.
still did me walk for 15 mins.
pain ok today stiffness not good.
chemist has some how forgotten my delivery so call them tomorrow also.grr
melly

Hi Amanda aww no thats ok woudlnt have expected you know,yes they giving me enteric coated naproxen this time plus im o omprezole daily still anyway.

if not enough il try slippery elm.
so so fatigues today,knees bit like walking in water ,rashes up.
roll on sun cream and planequil kicking in.
melly

Hi Melly

I find Naproxen really good for dampening inflammation so hope it works for you.

A tough time for you but you will get there. You are a really strong person who takes everything in her stride. Stay positive you are now in a much better position and there is light at the end of what has been a long dark tunnel. Most of all get loads of rest whenever you can; it's amazing how the body can repair itself with the right ingredients.

Thinking about you Melly,

Lyn x